Bikeweek fights ALS

‘I was diagnosed with ALS (amyotrophic lateral sclerosis) over a year ago.
This diagnosis has changed almost everything. I no longer have to worry or think about the future. Not about mine - my path is mapped out! And cruel. Not just because my body deteriorates a little more every day, but because it also affects my family.
The people who are closest to me and who have been grieving since the diagnosis. Every day. And I can't do anything for them except be there and comfort them.

But there is one thing I can do: ask for help!
ALS patients have no lobby that stands up for them.

We have to do it ourselves. And that's not easy - after all, your own privacy is suddenly out in the open. It's also very difficult for me. But I'm not doing it for myself, but for the next generations of ALS sufferers. And for their children and partners.
It no longer helps me.

An American doctor once said that ALS could be cured - it's just underfunded! That's why I'm now asking for your help for a very promising project at the Medical University of Vienna. Deposits of the protein TDP43 in nerve cells play a major role in ALS. The research group at the Medical University of Vienna is pursuing the approach of eliminating these protein deposits. Initial results in a genetic form of the disease are promising and show that this leads to a significant improvement in the function of the cells. Nerve cells that the muscles need to function.

A follow-up study is now important for this. But, as is so often the case in research, there is a lack of money.
This project gives hope. For my loved ones and for me too.
And - as they say - hope dies last.

Please help to keep it alive.’